As New York's spring budget deadline approaches, mothers of medically fragile children are advocating for the Complex Care Assistant (CCA) Bill, which would provide compensation for at-home care. The bill, co-sponsored by Assemblyman Billy Jones and Senator Dan Stec, is aimed at addressing the shortage of nurses for medically fragile children who require constant care. Parents like Geana Brassard Dyer and Kelsey Neri are pushing for the bill's passage, as they provide 24/7 care for their children, often without the necessary nursing support. Current Medicaid funding for pediatric nursing is insufficient, leaving many families to bear the emotional and financial burden of caregiving. With legislative action expected soon, advocates hope the bill will help ease their struggles and ensure children receive proper care at home.
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